How Advocacy Groups and Patient Data Can Help Drive Health Equity

AJMC August 15, 2022
Adam Mariano, Esq, MSPH

How can higher use of affected person information enhance well being fairness? Adam Mariano, Esq., MSPH, senior director, Product and Technique, Built-in Well being Observe at IQVIA, discusses with Proof-Primarily based Oncology TM (EBO) how the altering panorama in information possession may permit higher use of information from teams who’ve traditionally been poorly represented in medical trials. Adjustments introduced on by the twenty first Century Cures Act1 and the Affected person Entry Rule2 create an vital position for affected person organizations, Mariano stated.

EBO: What’s the position of affected person organizations in acquiring information?

Mariano: The change in information possession in america being pushed by the Cures Act and the Affected person Entry Rule provides affected person organizations an actual alternative to coach sufferers about their…

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